Autism Diagnosis Waiting Lists in the UK – And What You Can Do

The UK is currently facing a severe backlog in autism diagnostic services, with over 187,000 people in England awaiting an autism assessment as of mid-2024. This backlog represents a 22% increase from last year, and many of those waiting have exceeded the NHS target of 13 weeks. In fact, the majority have been waiting for over a year, highlighting the strain on the system. But while this issue has been widely reported, another challenge goes unspoken: the misunderstanding around accessing support in schools and the role of formal diagnoses.

Many parents are told that their children must have a formal autism diagnosis before they can access essential support in school. However, this isn’t actually a requirement under UK law. According to the Special Educational Needs and Disability (SEND) Code of Practice, schools are obligated to provide support based on the needs of the child, not their diagnosis. In fact, schools should be identifying and supporting children who display signs of autism and other neurodiverse conditions without needing to wait for a medical confirmation.

Unfortunately, the reality is that many schools and local authorities still operate under the misconception that formal diagnoses are essential to unlock funding or resources. This leaves children without the support they need, often exacerbating issues like social isolation, academic challenges, and mental health problems. The impact of these delays can be devastating, and families frequently find themselves navigating complex systems to get basic help for their children  .

Understanding Your Options

While it is vital that public services work towards reducing these waiting times, families should also know they have other options. Seeking a private autism assessment can be a faster route to diagnosis and, crucially, the support that comes with it.

For many families, a private assessment can make all the difference, cutting down wait times significantly and allowing children to receive the help they need sooner. The right to choose a private assessment is a legal and valid route, particularly when the public system is overwhelmed, as it currently is. A private diagnosis can be equally recognized by schools, provided the assessment meets the appropriate criteria.

A Supportive Approach

While this blog highlights the issues within the current system, it’s also essential to note that families should not feel alone. Whether you decide to wait for an NHS assessment or seek a private option, there is support available to you and your child. At Clear Path Diagnostics, we specialize in autism diagnostics and work with families to ensure a smooth, compassionate, and professional service. We are committed to reducing the stress that comes with long waiting lists and helping you access the support that your child needs as soon as possible.

References:

• National Autistic Society, Autism Waiting Time Report, June 2024

• The Independent, Record 190,000 Patients Waiting for Autism Diagnosis by 2024

• FE News, Autism Assessment Crisis and Solutions, September 2024